I'm not going to say what it is, or confirm any suspicions because I don't really want it to define me, that's my problem.

Symptoms include many things, that separately you wouldn't think a problem exists. Headache, nausea, lethargy, decreased libido, cold hands and feet, sore muscles, constipation, memory loss and depression.

It's affecting me day-to-day. I'm constantly tired, sore muscles, and I've noticed the memory loss more lately. The headache and nausea I just can't control. It's affected my diet to the point where I barely eat a thing, and people often wonder why I still exist, more or less.

What my problem is, is dealing with it. It's just a diagnosis. I am not serious enough to receive medical treatment so it's not been formally discussed with a doctor yet. So I'm left in limbo until it gets worse. And it can only get worse. Because of this, I've just been putting it to the back of my mind. Forgetting it's there, but then suddenly I'm like "Fuck, I'm stuck with this FOREVER" and it really depresses me.

Are there ways of coming to terms with it or anything? Without ignoring it's a condition I have, and will not get rid of? Because each time I think about it, I'm back at square one, back on the bottom rung of the ladder, sliding back down that snake.

I know it's not life threatening, and like I said, I'm more than grateful that that's the case. But it's still something quite large and rather important to me.

Give it time, it wont be perfect but youll find the best ways for YOU To cope. Its different for everyone.

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Do It Because You Want To. Ignore whether others think its
'cool'. It probably is.

Post edited at 11:36 am on Nov. 19, 2008 by Glory

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"Put on your big girl panties, and get over it"

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whats that called that you hve i want to know i thiink i my have that

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see a doctor if you think something is wrong.

Quote: from Molfsontan at 7:33 pm on Nov. 19, 2008

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Do you have Fibromyalgia or Gilbert's Syndrome?

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this is not my issue.

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I think I know what it is.

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but why is that important?

I made a point that WHAT it is, is not important. MY mother and sister have it.

It's dealing with it that's important to me.

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Quote: from Glory at 7:35 pm on Nov. 19, 2008

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I think I know what it is.

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but why is that important?

I made a point that WHAT it is, is not important. MY mother and sister have it.

It's dealing with it that's important to me.

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Then it will be more difficult. Theres no way anyone can say "Do this" because you dont know it will work.

You need to give it time and I realise your just looking for comfort.....

It will take time.

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Do It Because You Want To. Ignore whether others think its
'cool'. It probably is.

It is hard to give advice without knowing exactly what it is.  If we cannot fully understand the disease, we don't know how to give you good advice.

Post edited at 11:42 am on Nov. 19, 2008 by Glory

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"Put on your big girl panties, and get over it"

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Is it Raynaud Phenomenon?

It is hard to give advice without knowing exactly what it is. If we cannot fully understand the disease, we don't know how to give you good advice.

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No.

I've given you:
> life time
> not life threatening
> symptoms
> cannot have medical treatment yet cos I'm not bad enough
> once bad enough, it can be sorted via medical treatment and I will no longer have these symptoms to the severity I have now.

Giving it a name gives you nothing more.